End of Round 1 of maintenance

On 25 September it was the end of round one of maintenance and the removal of James Hickman Line!  The day started with getting up around 6am as we needed to be at the hospital at 7.30am for surgery.  We met three different doctors – the anaesthetist, the doctor doing the bone marrow biopsy, and the doctor removing the Hickman Line.  James was second on the list but didn’t go into surgery until about 11am.  When James woke up after surgery he was feeling really sleepy, so we didn’t leave the hospital until about 3.30pm.  For the next few days James was not feeling very well, I think in part due to the anaesthetic, he vomited a few times and was very tired.  There are some of the photos from that day in the photograph tab!

School and Choppers

It has been a couple of months since my last update and James is doing well.  He is managing about half a week of school at the moment but I am hoping it will increase next term.  He does get quite tired and has been having tummy aches and a few mouth ulcers as a result of the chemotherapy and he still struggles being around so many people.  It is hard to know when to push him to do things and when not to as he has been through so much and he still has 2 years of treatment to go.  On the other hand James needs to get back to a some normality and gain confidence again.  In the meantime I have decided to just go with the flow because in the scheme of things this is nothing compared to what he has been through and what could have been. 

 

Since the last update, James, Alofa, Ria, Tali and James’s friends Malua, Jade and Hayden,  went to Pak n Save in Petone on 6 September where Josh Kronfeld and Shane Cameron rode from Auckland to Wellington on Choppers to raise money and awareness for the Child Cancer Foundation.  Check out the photos on the photograph tab.