22nd December 2011
Looks like James will be in hospital for Christmas but will be allowed to get out during the day. He is getting a Hickman line put in tomorrow which is a small operation where they put an IV line in a vein in his neck down to his chest. This makes it easier to give him his chemo and to withdraw blood. He is doing okay.
21st December 2011
So much for escaping CHOC - James got a high temperature so we had to come back to hospital last night for IV antibiotics - I was starting to like the freedom too! He is okay but we have to be here for another few days.
20th December 2011
Last night was our first night in Ronald McDonald Christchurch - they are awesome!!! I set up James’ feed for the night (nasal gastric) but he was still hungry and thought he might try spaghetti on toast. Unfortunately it didn't like him too much and he vomited it all up...off to the hospital again to get another nasal gastric tube put in and more laughing gas! ....and we are away again....
James said Mum “I don't like this thing on my wrist (the identification tag) and why do I have it anyway”.... I said he needed it so he was identifiable and he said..."Mum but I already know who I am"....the humour is returning...
19th December 2011
It is 4 weeks today that James was diagnosed with Leukaemia and we have just been given the news that James has recouped enough good blood cells to leave the room!!!! We are off to Ronald McDonald House today and back on Thursday for checkup - thanks everyone for all your prayers and support xxxx. Round 2 starts on 28 December.
15th December 2011
It has been a good week. Lisa Lualua Aati has been here to support us - do our washing and making sure I get fed - love you Lisa L. Thank you to Lisa Gestro for your support - Love you lots and Michelle Tipene and Lea for looking after my girls and Hollie Howland for cooking meals and to everyone else - Arakura School, Wainui Judo for their fundraising - the list goes on. We are blessed for all the people who are praying for us and supporting us during this time. James is onto his 5th nose gastric tube to get food in his tummy as he keeps vomiting them up. His neutrofils are rising so hopefully we can leave isolation at the end of the week and be able to get out for Christmas. Christmas this year is at Ronald McDonald House in Christchurch and then the next round of treatment starts at end of December. We have had a lot of visitors - the vounteer fire brigade were in this week (I forgot to get a picture) and Father Christmas and his helpers. My cousin Angie Aberdein is here visiting us from Scotland which is awesome - she is doing our washing and getting my meals for me. Ali is coming down on Friday which we are looking forward to and next week I will get to see my beautiful girls again xxxx
12th December 2011
James is doing really well. We may even be able to get out of the isolation room later this week yay!
9th December 2011
Yay James is feeling much better today xxxxx
6th December 2011
The last few days James has been a bit unwell which is a side effect of chemo. His body does not have the ability to fight infection so he has been having high temps and vomiting...however the docs are onto it and have given him heaps of anti biotics....the staff here are brilliant. Thanks again to everyone for your support...it means alot to Ali and I knowing that so many people care and are praying for our beautiful son James xxxxx
30th November 2011
James has finished this round of chemo and is doing well. He has received blood products and blood transfusions. He is feeling a lot better today. Thank you everyone for your prayers and support xxxx Address here is CHOC, Christchurch Hospital, Private Bag, 4710, Christchurch 8140.
26th November 2011
Thanks everyone for your support and love - James has started his hard core chemo drugs and will be in isolation for a month so that his blood cells renew - he is such a brave boy
24th November 2011
James was diagnosed quickly with APML (leukaemia) - I took him to the doctor on Monday as he had unexplained bruising to his body - we were transferred to wellington hospital same day with confirmed diagnosis. He has had a bone marrow biopsy and has had blood fusions and chemo. We were flown down by life flight Tuesday morning to Christchurch hospital (CHOC) where he is receiving treatment. We could be here for a long time but will know more about his treatment plan today. Please pray for our boy.
23rd November 2011
My beautiful boy James has been diagnosed with a rare form of cancer. We are now in Christchurch hospital undergoing intense treatment. Alii and I thank all our friends and family for your support. I will try and update my facebook page however it is full on at the moment. Thank you to Lealofi N Jade Nanai, Michelle Tipene, Lisa Lualua Aati, Aberdein and Tapuai family for your help xxxxxx