James has a visit from the Crusaders in CHOC

Homeward Bound

James last round of chemo has gone really well and we should be going home next week.  The doctors discharged James from the hospital today to Ronald MacDonald House while his blood counts recover.  On Tuesday 22 May if his neutrophils reach 0.75 then he will have his last intrathecal chemotherapy ever and will start his maintenance therapy.

James is really excited about this and knowing that this part of his journey is now over.  He is looking forward to coming home and seeing his dad, sisters, wags, puss puss, and all his friends again.  It will be kind of sad leaving Christchurch as we have spent a lot of time here and have met some amazing people and very special kids.

The next part of the journey is 2 years of maintenance chemotherapy for two years, at home!

JAK

Last round of intense chemo

James started his last round of chemo yesterday.  The doctors are very pleased with his progress and don't envisage there will be any problems.  Once this round is over we wait for his counts to recover and then we can go home for good!  To prepare for this James has had visits from the occupational therapist and other professionals to get him ready.  It has been a tough road at times but we are lucky that his treatment has gone to plan - some children aren't so lucky... James hair has fallen out and he is still being fed by nasal gastric tube but he does manage a few bits of food _ this will increase as time goes by.  God bless Jak